Following mutual agreement between the Association of Young People with M.E. [AYME] and Action for M.E. the Boards of Trustees, AYME ceased operating as a charity on Monday 3 April 2017 and Action for M.E. launched its new Children's Services team. AYME’s Chief Executive Mary-Jane Willows took up the position of Head of Children’s Services and consultations were undertaken with AYME staff regarding their transfer to our team. The Boards of Trustees of both charities wholeheartedly believe that this will benefit children, young people, adults and families affected by M.E


About Action for M.E.

Imagine having months off from school or work because you are so ill, so pole-axed by fatigue and pain that you are no longer able to tell the time when you look at the face of a clock. Imagine you can no longer read even the shortest paragraph because your power of concentration is reduced to zero.

That is the experience of many thousands of people with the chronic neurological condition myalgic encephalomyelitis (M.E.), sometimes diagnosed as chronic fatigue syndrome (CFS, or M.E./CFS), which affects around 250,000 people in the UK, and 17 million worldwide, of which 25% are severely affected.

Action for M.E. strives to end the ignorance, injustice and neglect faced by people with M.E. We do this by meeting need to improve the lives of people with M.E. while taking action to secure change for the future.

Alongside providing information, support and advice to people to help improve their health and well-being, Action for M.E. works with professionals to enhance the care and support that people with M.E. receive and funds pilot research projects to advance knowledge of the illness.

Our small, dedicated team is supported by around 70 adult and young people volunteers, working with us in our Keynsham and Scotland offices and at home to deliver our vital services.

Mary-Jane Willows, then CEO of AYME, the original publishing charity, said in 2010: “Emily Collingridge was one of AYME's first volunteers and we have always known her skills and expertise to be exceptional. However, no-one could fail to be impressed by what Emily has achieved with this book. Her own ME has, at times, been shocking in its extremity (even to those of us with extensive experience of the illness) and she continues to suffer daily. How someone who still needs 24 hour care and high doses of morphine can produce a book of such quality and value is quite astonishing. Emily has invested every ounce of the strength she has into "Severe ME/CFS: A Guide to Living"; on behalf of all those affected by severe ME, AYME would like to express enormous gratitude to her.”

Now leading Action for M.E.’s Children’s Services Team, Mary-Jane and the Action for M.E. team are honoured to continue promoting Emily’s book. Mary-Jane says: “ME/CFS is always a debilitating condition, but when experienced in its severe form it is utterly devastating and extremely frightening. Through my work I have seen first-hand the major care and support needs of those who are severely affected. But I have also seen how neglected this group are. There are a handful of medical professionals who know about very severe ME/CFS and the help available to these very sick people is extremely limited. Patients - and the carers upon whom they depend 24 hours a day - are frequently left to struggle alone.

Action for M.E. works hard to support children and young people with severe ME/CFS and their families as well as to guide the health, social care and education professionals involved with them. So the opportunity to continue to support and promote a book which will provide detailed knowledge and information to all these groups is an honour. We are confident that "Severe ME/CFS: A Guide to Living" will transform understanding of severe ME amongst all those who can help patients and bring tremendous relief to patients of all ages, their carers’ and loved ones.”